For most children in Russia, kindergarten is the first step in a their education and the first experience of a life outside the family. This is a stage that many disabled children miss out on because mainstream kindergartens aren’t equipped to look after them. There just aren’t enough places in mainstream or special provision.
This term we hope that more children with special needs will have a more positive start in kindergartens, and that the staff will feel more confident meeting their needs. Our partner organisation, Physical Rehabilitation, in St Petersburg has been running a programme particularly aimed at training kindergarten staff Continue reading Kindergartens equipped to look after disabled children
Download our summer newsletter to find out more about the summer camps we will be funding this year. This includes the unique perspective of one of the volunteers helping on the Sunflower summer camp for parents who grew up in orphanages and their children. We also have a full report on the training visit our colleagues from St Petersburg and Moscow made to Krakow to get new ideas on helping children with complex disabilities to communicate. From Georgia, our colleagues at Mkurnali report on the vulnerable young people that they have saved from prison recently.
Download our winter newsletter to find out how our Alternative Technology programme helps find different ways to communicate for young disabled people who cannot speak, how we hosted Father Lev and his helpers from the Kondopoga Parish in the UK and about their plans after their return to Karelia, how Sunflower helps Russian orphans to be independent, and how our legal programme run by Mkurnali helps save young people from prison.
We all take being able to communicate for granted, but just imagine if, aged just 15, you had had to face spending the rest of your life virtually house-bound and unable to communicate with anyone. This is the future for many disabled people like Gleb in Russia today without our help. This is why we are launching our Christmas appeal to bring them the chance to communicate.
Our Alternative Technology programme is about finding different ways to communicate for disabled young people who can’t speak and may never speak. It is about opening up the world and giving them the possibility of making friends. And it works!
Gleb is 19 and an only child. He does not speak because of a rare genetic syndrome, which affected his development from the first months of his life. He needs to be accompanied and helped in his daily life. Gleb is a sociable and determined young man and he is happiest when he is busy. But he can only communicate by a gesture or a sound so communication is critical for his development, making new friends and exploring the outside world. Unfortunately there are simply no other facilities in Moscow which can offer disabled young people a chance to be active in the community and give them a different perspective on life.
Zhanna is totally focussed on helping and encouraging her son. Since he was 10, Gleb has been attending sessions at “Communication Space”, our partner charity in Moscow. Since the start of our Alternative Technology programme last year Gleb also began using special books and software which help even more to express himself through signs, symbols and gestures and he is making big progress.
Zhanna says: Alternative communication is the most important aspect of Gleb’s and my lives today. Last week Gleb managed to explain with his communicative book that he played compunter games with someone who wasn’t familiar with alternative communication. That’s great and this means it works! So all my efforts are not in vain. And of course the specialists’ efforts – we could not do it without them.”
Liza’s multiple disabilities have made life more challenging for her and her family. She has cerebral palsy and poor sight. When our colleagues first met Liza she couldn’t sit or stand unaided, or use her left hand. She could only play with the simplest toys, like a rattle, and, being unable to talk or express herself, she easily got frustrated and angry.
Julia Ashmore has recently returned from a visit to St Petersburg to meet our partners. While she was there, she introduced a group of 30 trainee teachers from Leiden in the Netherlands to our colleagues and pupils at Dinamika School for disabled children. They had found out about Dinamika through our website and wanted to find out what education was available to disabled children in Russia. They were positively surprised by what they found. They were particularly impressed by the equipment that teachers at the school had made or adapted themselves to meet the needs of the children, and by the facilities that St Gregory’s had a hand in providing: the model flat for teaching domestic skills, the craft workshop and the well-equipped gym. This was an excellent opportunity to introduce our work to a broader circle of young people and raise our profile and share our plans.
Camilla and her mama are members of our Club for toddlers with impaired hearing that you have generously helped to sponsor. Some time ago she had a cochlear implant fitted and has just come back to the club. A cochlear implant can help replace the sensation of hearing for some deaf people. As soon as she came back we could see that Camilla had changed a lot! She has begun to make a lot of sounds and syllables. Continue reading How our Club for toddlers with impaired hearing helped Camilla learn to talk