Download our winter newsletter to find out how our Alternative Technology programme helps find different ways to communicate for young disabled people who cannot speak, how we hosted Father Lev and his helpers from the Kondopoga Parish in the UK and about their plans after their return to Karelia, how Sunflower helps Russian orphans to be independent, and how our legal programme run by Mkurnali helps save young people from prison.
We all take being able to communicate for granted, but just imagine if, aged just 15, you had had to face spending the rest of your life virtually house-bound and unable to communicate with anyone. This is the future for many disabled people like Gleb in Russia today without our help. This is why we are launching our Christmas appeal to bring them the chance to communicate.
Our Alternative Technology programme is about finding different ways to communicate for disabled young people who can’t speak and may never speak. It is about opening up the world and giving them the possibility of making friends. And it works!
Gleb is 19 and an only child. He does not speak because of a rare genetic syndrome, which affected his development from the first months of his life. He needs to be accompanied and helped in his daily life. Gleb is a sociable and determined young man and he is happiest when he is busy. But he can only communicate by a gesture or a sound so communication is critical for his development, making new friends and exploring the outside world. Unfortunately there are simply no other facilities in Moscow which can offer disabled young people a chance to be active in the community and give them a different perspective on life.
Zhanna is totally focussed on helping and encouraging her son. Since he was 10, Gleb has been attending sessions at “Communication Space”, our partner charity in Moscow. Since the start of our Alternative Technology programme last year Gleb also began using special books and software which help even more to express himself through signs, symbols and gestures and he is making big progress.
Zhanna says: Alternative communication is the most important aspect of Gleb’s and my lives today. Last week Gleb managed to explain with his communicative book that he played compunter games with someone who wasn’t familiar with alternative communication. That’s great and this means it works! So all my efforts are not in vain. And of course the specialists’ efforts – we could not do it without them.”
Find out more about how our partners help Gleb and others like him in this short video.
Liza’s multiple disabilities have made life more challenging for her and her family. She has cerebral palsy and poor sight. When our colleagues first met Liza she couldn’t sit or stand unaided, or use her left hand. She could only play with the simplest toys, like a rattle, and, being unable to talk or express herself, she easily got frustrated and angry.
As part of our Alternative Technology project for disabled children, Liza and her family have had regular sessions with a physiotherapist and a speech and language therapist. These have helped her learn to communicate, play and become more independent. Continue reading 5-year-old Liza learns to play