A window on Communication Space’s work with non-verbal, autistic adults

When you come across someone who is non-verbal, their life may seem to be shrouded in mystery, their thoughts and feelings inaccessible. Unless you know someone well who is non-verbal, the chances are that you feel rather daunted by interacting with them. Without help to bridge this gap, people who are unable to speak can become incredibly isolated. Fortunately, techniques do exist for enabling people we once thought could not communicate, to express their wishes, make choices and connect with others. Our colleagues at Communication Space are introducing these techniques to the Russian-speaking world. This beautiful video that they have made gives a fantastic insight into their work.

A note for non-Russian-speakers. Open the video in You Tube, open the settings, select subtitles. Turn subtitles on by selecting Russian. You can then go back into subtitles and select auto translate to get auto-generated English subtitles.

Communication Space helps Ilya

Ilya

Iya is 27 years old. Since birth, he has suffered from profound intellectual, visual, and motor impairments. He was also diagnosed with autism. Ilya is one of 20 children and young people who benefit from personalised help at the Communication Space Centre, which assists with their communication and independent living.

Due to his severe impairments, Ilya is unable to use communication books and pictures, relying only on natural gestures and pointing to objects. He fears and avoids unfamiliar public places, which can often lead to epileptic seizures. Ilya lives with his mother, Irina, and needs constant care and support from adults.

Last year the Centre’s specialists helped Ilya to adapt better to new places. He has become particularly good at understanding the difference between a hardware store and a grocery store, and he behaves differently in them. Grocery stores are his favourite! The main positive changes in his communication are related to food—it is during meals that Ilya began to initiate contact more often. At home, he has learned to rely on the daily routine.

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Alternative Communication improves every aspect of life

Andrei is 21 and he has Fragile X Syndrome, which affects his learning ability. He has been coming to Communication Space for group and individual sessions for more than ten years.

Alternative Communication is helping him in so many areas of his life. He uses the centre’s visual timetable and timers to understand what is going on through the day, which helps him stay calm.

He continues to make progress with his communication book. He can put together simple phrases and knows around 300 symbols. He can ask for help or ask for a break if an activity is getting too much. He has even started keep fit exercises using visual prompts. Now Andrei is working on the skills he will need to start using a tablet to communicate.

Communication Space write on their website:

People think that it’s all good here. And it really is good. But it didn’t happen by accident. It is the result of our accumulated experience and constant effort, which we put into creating a welcoming space, building a good team, putting together our programme, establishing our relationship with families. It’s good here because we don’t rely on formal interactions where the teaching task or organisational task is the most important, but on humanity.

What is for sure is that without the ability to communicate, it would all fall apart. Finding ways to communicate with those who can’t use speech is the key.

Alternative Communication helps Vladik

Vladik uses Alternative Communication

The world can be a confusing and frightening place for Vladik, aged 5. Sudden movements or sounds can scare him. Vladik has moderate learning difficulties, restricted mobility and delayed speech. Fortunately, our partners Communication Space in Moscow, have been supporting Vladik for more than a year. He is extraordinarily lucky to have such skilled, patient and compassionate people working with him. They are able to spot all the small things that Vladik can do, and have the knowledge and experience to be able to build on this.

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Christmas appeal: help Gleb communicate

We all take being able to communicate for granted, but just imagine if, aged just 15, you had had to face spending the rest of your life virtually house-bound and unable to communicate with anyone.  This is the future for many disabled people like Gleb in Russia today without our help.  This is why we are launching our Christmas appeal to bring them the chance to communicate.

Our Alternative Technology programme is about finding different ways to communicate for disabled young people who can’t speak and may never speak.  It is about opening up the world and giving them the possibility of making friends.  And it works!

Gleb and his mother ZhannaGleb is 19 and an only child. He does not speak because of a rare genetic syndrome, which affected his development from the first months of his life. He needs to be accompanied and helped in his daily life. Gleb is a sociable and determined young man and he is happiest when he is busy. But he can only communicate by a gesture or a sound so communication is critical for his development, making new friends and exploring the outside world.  Unfortunately there are simply no other facilities in Moscow which can offer disabled young people a chance to be active in the community and give them a different perspective on life.

Zhanna is totally focussed on helping and encouraging her son.  Since he was 10, Gleb has been attending sessions at “Communication Space”, our partner charity in Moscow. Since the start of our Alternative Technology programme last year Gleb also began using special books and software which help even more to express himself through signs, symbols and gestures and he is making big progress.

Zhanna says: Alternative communication is the most important aspect of Gleb’s and my lives today. Last week Gleb managed to explain with his communicative book that he played compunter games with someone who wasn’t familiar with alternative communication. That’s great and this means it works! So all my efforts are not in vain. And of course the specialists’ efforts – we could not do it without them.”

Find out more about how our partners help Gleb and others like him in this short video.

https://www.youtube.com/watch?v=gmxTFr4kb7Q&t=29s