Since we started working together, The Rain Kids Centre’s goal has been to improve the quality of the therapy they are able to offer children with developmental disabilities, such as autism. St Gregory’s has been funding supervision by an experienced therapist from Romania. She has visited to observe the work of the centre and provide training sessions.
Continue reading The value of a good supervisor
7 year-old Gordei has been making great progress with his communication book thanks to the skilled professionals at Communication Space.
St Gregory’s works in partnership with Communication Space to introduce alternative technology to Russia to benefit people with disabilities. Gordei is one of the children who has recevied bespoke teaching, opening up new ways of communicating.
Gordei has cerebral palsy, which affects his ability to speak. fortunately, his parents found Communication Space, and he is now learning how to use PECS – a language of visual symbols contained in his communication book.
Until recently, Gordei would only use one symbol at a time. He would rely on the person he was “talking” to being able to guess what he meant. The therapists at Communication Space have made some simple adjustments to the way the symbols are arranged in his book, and now he is putting two or even three symbols together in phrases. Recently, in answer to the question, “How are you?”, Gordei answered “bad” and then himself found the symbol for “cold”. It is already becoming easier for those around him to understand Gordei. The solutions may seem simple, but it takes skill, empathy and patience to make this kind of breakthrough. We are so glad our colleagues are helping train others so that many more children like Gordei can express themselves.
The journey from Chişinău to Călărași was just over an hour to The Wish Centre for disabled and autistic children and youths. This centre is a beacon for many local families who are raising children with special needs. Currently it is the only place in the region they can turn to for help and guidance.
Eugenia, who is just over 30, saw her life take a dramatic turn a decade ago when her sister lost her parental rights, and Eugenia found herself looking after her niece Ana, a baby with Down syndrome.
Continue reading A visit to The Wish Centre
Recently, the Deaf Club surveyed it’s parents. Grisha’s mum, Anastasia, responses show us just what the Club means to families.
What does visiting our club give you?
We go to the Club with our 2-year-old son Grisha. Coming to the Club with my child, I feel calm. I learn a lot bout child development. I can also talk to other parents and discuss problems. Grisha has the opportunity to socialize from an early age, being with both children and adults in the same place.
Continue reading Parent praises Deaf Club
This year our Christmas appeal is in aid of The Wish, a Moldovan charity that is providing rare community support for children with disabilities in Moldova.
Ana is eleven now, and she has been coming to The Wish since she was five. Ana had a difficult start in life. She used to live in the countryside with her mother, who is disabled, and her grandfather. After her grandfather died her mother couldn’t cope financially or practically. Fortunately, the wider family were able to help and Ana now lives in Călărași with her aunt.
Ana also has Down syndrome. Her aunt is working hard to try and meet her additional needs and brought her to The Wish. When she first joined aged five her language skills were poor, as well as her co-ordination and fine motor skills. The Wish provide her with a personalised programme of therapy including speech therapy. She also takes part in a whole range of activities, both educational activities and social ones. Ana is integrated into a local mainstream school, but she only attends two days a week. This makes The Wish’s support absolutely vital both for her and her family.
Ana is lucky in that in her aunt’s family she feels loved and important as a member of the family. Eugenia strives to educate her properly and to be her mother and close friend as well. The Wish supports her aunt and mother by teaching them about Down Syndrome and about some of the strategies and techniques they use to work effectively with Ana. They are fortunate to have formed a good team with her family – together they can give Ana much more support than either of them can alone.
We are delighted to see the progress that Ana has made, and to see her enjoying our group activities so much. It is very much for Ana, and other children like her, that we are appealing today. It is so important that Ana’s care is not interrupted, and so we are doing all we can to fill gaps in the local funding. Can you help us raise £4,300 by the end of the year so that we can continue to be there for Ana and her family (as well as 29 other children and young people)?
On 28th November, Giving Tuesday, there is a great opportunity to help. You can help us win a share of $1,200,000 by donating on that day via Global Giving.
We also have tickets on sale for our online talk on Ukrainian art and architecture from an esteemed curator, Alexei Leporc, at The Hermitage Museum.
The Wish (Dorintsa) is based in Călărași. They provide therapy and education for children with additional needs in this mainly rural area.
Sunny Corner (Plaiul Soarelui) runs a farm in the Moldovan countryside, where young people with disabilities can get involved in meaningful work and social activities. We are delighted to have co-sponsored a ball for their families, and young people with learning difficulties from further afield, including Ukraine. Parents talk of how the event made them feel visible, and brought great joy to their children.
Rain Kids (Copiii Ploii) is based in Chișinău, the capital of Moldova. The charity provides therapy to children with special needs. Together we are tackling the skills gap by funding additional training for their therapists.
Six families with children aged 5 to 11 took part in Sunflower’s summer camp this year. The venue this year was different: they stayed at a centre in Komarovo beside the Finnish Gulf as the log cabin (the dacha) required some repair and later a dramatic fire happened at the site.
A new location offered lots of scope for outdoor fun and games, and as usual special training was organised for both parents and children. Many of the activities related to the levels of freedom and responsibility that the parents give their children as they grow and establishing an appropriate balance. The children were able to explore the theme too through a fairy story, ‘Dwarf Long-nose’ in which a little boy has to cope with a magical transformation so complete that his parents don’t recognise him.
This is the scene in Dolbeniki at the dacha used by Sunflower for their summer camps. A serious accident at a local electrical substation led to a power surge and a wave of fires hit the area.
The free-standing dining room caught fire immediately, destroying the building, the furniture and also the kitchen equipment, which was stored there. Fortunately, no-one was hurt. The fire brigade arrived swiftly and the fire was extinguished. It did not spread to any of the other buildings used during the summer camps.
Sunflower are assessing the damage and the cost of creating a new eating area so that they can run summer camps there again. Meanwhile, volunteers have started to clear the site already, although the weather will soon force a break in the work. Serious work will start in spring 2024, when we hope to be able to help Sunflower recover.
This year, the summer camp started on 6th June and the Parish is planning to continue summer activities until 31st August before children return to schools in September.
Currently up to 18 children benefit from the summer camp, 15 of them are disabled children with a range of disabilities: learning disabilities, autism, cerebral palsy, eyesight problems, heart and lung conditions and 4 children are from poor families. All came from the Kondopoga region, the youngest is 6 years of age and the eldest is 15.
At the beginning of the camp, there was a slight problem with finding volunteers, which has now been resolved – 2 people help in the kitchen and 3 help run summer activities. One of these volunteers came from ‘ Zabota’ (Care) social centre.
Every day is organised differently, with different activities such as sewing, drawing, clay modelling, educational games and outdoor games. The camp is also somewhere their parents can get advice, consultation with specialists and volunteers at the Parish and most importantly moral support and a boost to their family budget. Depending on the weather, lessons are held outdoors and this helps to boost the children’s physical stamina. Masterclasses are held for children to create their own masterpieces in needlework, drawing and applique. Everyone is particularly excited to spend time with Danae, the dog of one of the volunteers who made friends with all the children last year. The children enjoy joining in theatre performances too.
The Parish is also planning to provide children with school supplies for the new school term.
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