Communication Space helps Ilya

Ilya

Iya is 27 years old. Since birth, he has suffered from profound intellectual, visual, and motor impairments. He was also diagnosed with autism. Ilya is one of 20 children and young people who benefit from personalised help at the Communication Space Centre, which assists with their communication and independent living.

Due to his severe impairments, Ilya is unable to use communication books and pictures, relying only on natural gestures and pointing to objects. He fears and avoids unfamiliar public places, which can often lead to epileptic seizures. Ilya lives with his mother, Irina, and needs constant care and support from adults.

Last year the Centre’s specialists helped Ilya to adapt better to new places. He has become particularly good at understanding the difference between a hardware store and a grocery store, and he behaves differently in them. Grocery stores are his favourite! The main positive changes in his communication are related to food—it is during meals that Ilya began to initiate contact more often. At home, he has learned to rely on the daily routine.

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Making books accessible

If you have young children in your life, you have probably come across the “That’s not my” series of tactile books. The chances are you won’t have seen them in this format.

This spring, our colleagues at Communication Space have been leading workshops on how to adapt books for those with multiple disabilities. The changes may be as simple as making pages easier to turn, or they might involve translating text into the PECS language of symbols used by some non-verbal people. As ever, the adaptations are simple, achievable and tailored to the specific needs of each person.

28 professionals and parents took part in the course and between them they made more than 50 adapted books.

How A-Tech has helped Sasha

Our partners, Communication Space Centre in Moscow, support children and young people who do not communicate verbally. We support their Alternative Technology programme, using hi- and low-tech means to make communication possible. We are delighted that they have been able to move to bigger and better premises recently.

Sasha is one of thirty children and teenagers that Communciation Space help with regular one-to-one and group activities funded by St Gregory’s Foundation. Sasha is 14. Like all Communication Space’s young people he does not communicate verbally. He also has learning, emotional and behavioural problems. In just six months, Communication Space have helped him make great progress.

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