Sunflower summer camps

This photo represents a touching moment in the life of Sunflower’s summer camp. Six families: mothers who grew up in children’s homes, one grandad who is raising his grandaughter, and their young children went away for six days to work on their parenting skills. This vital work helps prevent the next generation suffering from their parent’s childhood trauma.

Read more: Sunflower summer camps

At the start there was some tension. Everyone was getting used to the new conditions, and the weather meant they were all cooped up indoors. The children didn’t listen to their parents, and also didn’t turn to them when they needed help. They preferred to play on their own and would argue or run off when they were brought together. Yet, by the end of the summer camp, they shared this impromptu moment of togetherness. Tolya had found a ‘treasure’ and his friends were all eager to see what it was.

To get to this point took a lot of work, work which started right at the start of this year when the parents articulated what they wanted to get out of it. They all expressed the difficulty they had in getting their children to listen. During the six days of the camp, a key goal was to help the parents observe their children more closely, to read the signs that show what they need physically and emotionally. One mother said at the end, ‘I have begun to notice where I put pressure on my child. For now it’s difficult to do differently, but the main thing is that I notice those moments.’ Through play therapy and creative activities, the parents were helped to understand why their children refused to play with them, or got angry. Rather than mirroring their children’s behaviour, they learned ways to gently draw their children into the game.

Meanwhile, in the children’s group, the children were also encouraged to recognise and name their emotions. They began to take turns and even tried to resolve their own conflicts. When the group met up back in St Petersburg, they could all look back on many happy and creative moments. All are working hard to carry what they learned into their daily lives.

Introducing Alternative Communication

Our partners at Communication Space in Moscow continue their core work of teaching disabled young people to communicate. Here a communication book is enabling a chat about dinosaurs.

Excitingly, in the last year our colleagues have had the opportunity to teach others their methods. After an online training session on adapting books for non-verbal children, a specialist went away with plans to create a reading corner full of adapted books at her centre. Their teaching session at a conference on alternative communication was praised by delegates as one of the best of the conference. They continue to work too on guidelines aiming at more consistent use of alternative communication for those who need it across Russia.

Remembering our founder, Irina von Schlippe

On 16th June, 2025, our founder, Irina von Schlippe, sadly passed away. Some of you will have known Irina, and will have your own memories of her. We would like to share our own tributes, and those of our colleagues in Russia whose charitable work owed much to Irina’s energy, imagination and care.

Continue reading Remembering our founder, Irina von Schlippe

Kirill can’t stop smiling

The first thing you probably noticed about this photo is Kirill’s smile. He loves being with people, but since he left school he had spent most of his time at home with very little company. The reason is that Kirill has autism and learning difficulties and cannot speak. Fortunately, he is able to attend activities at Communication Space, the charity centre in Moscow that we sponsor. Now he starts smiling as soon as he gets on the bus to go to a session at the Centre.

When Kirill was at school, his teachers had tried to introduce him to the PECS symbolic language, but without success. They concluded that he wasn’t able to tell one symbol from another.

At Communication Space he didn’t seem interested in the pictures to start with, but gradually he learned to recognise the symbols for food, games and other activities. If he got upset, his teachers would introduce the symbol for that emotion, and so he increased his vocabulary.

Continue reading Kirill can’t stop smiling

Change to this year’s summer camps

Mother and toddler daughter painting together

On April 20, volunteers from “Sunflower” headed to Dolbeniki and got to work cleaning up the site, including the kitchen, fire pit, and bathhouse. While there, they ran into a big problem: the small pond that had always provided water for showers, the bathhouse, and dishwashing had dried up. Drinking water was always brought in from a nearby village, but without the pond, there’s no way to get enough water for a group—especially families. Talks are ongoing with the site owners to figure out solutions. One idea is drilling a well, but it’s tricky because water layers are deep in the Valdai Hills, and finding a reliable source could mean multiple expensive attempts.

Continue reading Change to this year’s summer camps

Autism Acceptance Month

April is World Autism Acceptance Month. In the UK we have made a shift from the usual awareness month to an acceptance month, and that is important. Of course autistic people around the world want other people to be aware of autism, but they also want to be accepted as part of the community, and as who they are.

However, in many parts of the world a great deal of work still needs to be done on awareness and the most basic rights for autistic people. In Eastern Europe, autism is still a new diagnosis and support within the community can be very patchy. In Moldova autistic children are often not able to attend school. There is little or no understanding of their needs, so if they do attend they find school very tough. We work with two organisations that are filling the gap, providing therapy and education for children who would otherwise be unsupported. They can also advocate for children with local schools so that they can attend, albeit sometimes part-time or with their mother acting as an unpaid classroom assistant.

In Russia we work with Communication Space to raise awareness of alternative communication methods that can work with non-verbal autistic children and young people. Those who attend their own centre are a wonderful advert for this approach. They are learning to express their wishes, to follow instructions, and to communicate out in the world, in shops and cafes. Online training sessions spread the approach to parents and professionals across the Russian-speaking world. Alongside this practical work, Communication Space also runs counselling sessions for parents. For them, acceptance is the first step towards a more positive outlook on life.

We hope that these small steps towards greater awareness, understanding and support will in time lead to greater acceptance in the communities we work in and beyond.

A window on Communication Space’s work with non-verbal, autistic adults

When you come across someone who is non-verbal, their life may seem to be shrouded in mystery, their thoughts and feelings inaccessible. Unless you know someone well who is non-verbal, the chances are that you feel rather daunted by interacting with them. Without help to bridge this gap, people who are unable to speak can become incredibly isolated. Fortunately, techniques do exist for enabling people we once thought could not communicate, to express their wishes, make choices and connect with others. Our colleagues at Communication Space are introducing these techniques to the Russian-speaking world. This beautiful video that they have made gives a fantastic insight into their work.

A note for non-Russian-speakers. Open the video in You Tube, open the settings, select subtitles. Turn subtitles on by selecting Russian. You can then go back into subtitles and select auto translate to get auto-generated English subtitles.

How Timofei is thriving thanks to our Deaf Club

In St Petersburg, we support a Club for pre-school children with impaired hearing and their parents. Timofei is nearly three and has been a member of the Club with his mama for a few months. He is one of several club members who have additional needs as well as being deaf. Fortunately, because the Club is part of the Early Intervention Institute in St Petersburg, his family has been able to access support from an Occupational Therapist, which has very quickly made a huge difference.

Continue reading How Timofei is thriving thanks to our Deaf Club

A big thank you from one of our deaf club families

Valentina Balobanova, who runs the Deaf Club we sponsor in St Petersburg, was doing her shopping recently when a woman stopped her. This was Nina, who used to go to the Deaf Club with her son Nikita. He is now twenty, but his mama still remembers Valentina and the Deaf Club. The meeting prompted her to write a thank you letter to Valentina, the other staff at the Early Intervention Institute, and to you, the donors who keep the Club running.

Nikita as a toddler
Nikita as a toddler
Read more: A big thank you from one of our deaf club families

“I would like to thank the Early Intervention Institute and Valentina Balobanova for the great help they gave me and my son son. A few words about us. My name is Nina Nikitina and my son Nikita was born in 2004. A year later, I found out that he could not hear and he was diagnosed with hedrocephalic syndrome (which was cured). Well, it would be an understatment to say that it was a tragedy for me. My world simply collapsed. I was raising him alone, and I had absolutely no idea what documents needed to be completed, or what to do with all this. Somehow, by chance, while sitting in the hallway of the audiology center, one of the mothers told me about the Early Intervention Institute. She told mme that they have an excellent diagnostic service there, and run classes. After some time, I realized this meeting was an incredible grace of God. Having come to the center, our family found care and friends with the same difficulties. I found out where to go, what documents to fill out, what benefits I was entitled to, and where to get his hearing aid serviced. Basically, I learned everything I needed here. I have never met such warm people before. We didn’t miss a single class or event that took place at the institute. This became our second home. I want to thank the sponsors who make this possible from the bottom of my heart. You do an incredible miracle for us, such families, children.”

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Winter newsletter out now

Our winter newsletter is out now. You can read how your generous response to our summer appeal allowed us to rebuild the dining room of the Sunflower summer camp after it was destroyed by fire.

Many of the stories in this issue are about the difference your donations are making to disabled young people. We have Ilya, who is suprising his mother by making great progress even at the age of 27. We have news from Rain Kids in Chişinău, Moldova, who are benefitting from training for a key member of staff.

Our Christmas appeal this year is to help Adelina and other children who like her have special needs in Calarasi, Moldova. Can you help us raise £5,000 to fund a speech therapist and a special needs teacher for one year?

Finally, if you download the PDF version of the newsletter, you will find extra stories and details of our Christmas cards and gifts, which didn’t fit in the blog.