Our May newsletter is out now, including a round up of our news from Moldova, Georgia and Russia. You will see how your donations are being used to support Luisa, who found herself homeless in Tbilisi, and Vika in St Petersburg, whose mother died. We report on our colleagues who are teaching others how to adapt books for people with a range of disabilities, and providing the only therapy available for children with special needs in Călărași, Moldova.
An urgent problem we have this year is helping Sunflower recover from a fire at their summer camp base. This was caused last year by a fault at a local substation. Sunflower have managed to get the lights back on, and have also fundraised locally to replace damaged kitchen equipment. What they now need help with is transport both for their new equipment and for their volunteers, and food to sustain the volunteers as they make the site ready for this year’s camp.
Check out our appeal page if you would like to help.
In some ways, Vika is not typical of the young people that Sunflower help. She is actually an orphan – her mother died when she was 16 – and she is living in an institution until the paperwork is completed on the flat she is entitled to.
The majority of the young people in these institutions are there because their parents were not capable of looking after them. Sunflower has also recently started accepting young people who have grown up in foster care or an adoptive family onto its programme. What they all have in common is an experience of trauma. They are all alone in the world, without family to guide or support them.
Vika explains something of what life has been like:
“I have lived all my life in St Petersburg. Me and Ilya are twins. I ended up in a children’s home after the authorities turned up at home. We had a lot to deal with in our life, we were hiding from the pandemic, there wasn’t any money then, we often moved around, we lived in Krasnogorodsk near Pskov, where Mama got ill and died. Then Dad (she calls her step-father dad) started drinking. It was scary. It was a good thing that we ended up in a children’s home, there we get all our benefits, and they’ve even shown us a flat in our own district. That’s some kind of luck.”
Vika is carrying a lot of responsibility. She worries very much about her brother, who she says is depressed. She can’t imagine life without him. She finds it difficult and frightening to think about the future.
Vika is really benefiting from Sunflower’s individual counselling. It doesn’t just allow her to get things off her chest, but to put the events of her life in order and to think about them clearly and calmly. She also goes to the group meetings once a month.
If you have young children in your life, you have probably come across the “That’s not my” series of tactile books. The chances are you won’t have seen them in this format.
This spring, our colleagues at Communication Space have been leading workshops on how to adapt books for those with multiple disabilities. The changes may be as simple as making pages easier to turn, or they might involve translating text into the PECS language of symbols used by some non-verbal people. As ever, the adaptations are simple, achievable and tailored to the specific needs of each person.
28 professionals and parents took part in the course and between them they made more than 50 adapted books.
When talking comes easily to you, it’s hard to imagine finding it so boring, you just can’t be bothered. However, until Pavel started sessions at Communication Space, boredom was seriously holding him back.
Up until last year, Pavel had taken part in various programmes to help him communicate. These even included using alternative communication, since he doesn’t talk. However, the same pattern would emerge each time. He would learn some simple symbols, they would enter his vocabulary, but then he would get bored and stop using them. He was getting quite disengaged with the whole thing until Communication Space tried a new approach.
Recently, the Kondopoga parish fulfilled an ambition to take the older children to visit Staraya Ladoga, the first capital of Russia. Despite hitting a snow storm as they travelled south from Kondopoga, they managed to get there and back in a day, and to see the highlights of this ancient town.Continue reading Exciting trip for Kondopoga’s children
Our partners, Communication Space Centre in Moscow, support children and young people who do not communicate verbally. We support their Alternative Technology programme, using hi- and low-tech means to make communication possible. We are delighted that they have been able to move to bigger and better premises recently.
Sasha is one of thirty children and teenagers that Communciation Space help with regular one-to-one and group activities funded by St Gregory’s Foundation. Sasha is 14. Like all Communication Space’s young people he does not communicate verbally. He also has learning, emotional and behavioural problems. In just six months, Communication Space have helped him make great progress.
Six families with children aged 5 to 11 took part in Sunflower’s summer camp this year. The venue this year was different: they stayed at a centre in Komarovo beside the Finnish Gulf as the log cabin (the dacha) required some repair and later a dramatic fire happened at the site.
A new location offered lots of scope for outdoor fun and games, and as usual special training was organised for both parents and children. Many of the activities related to the levels of freedom and responsibility that the parents give their children as they grow and establishing an appropriate balance. The children were able to explore the theme too through a fairy story, ‘Dwarf Long-nose’ in which a little boy has to cope with a magical transformation so complete that his parents don’t recognise him.
This is the scene in Dolbeniki at the dacha used by Sunflower for their summer camps. A serious accident at a local electrical substation led to a power surge and a wave of fires hit the area.
The free-standing dining room caught fire immediately, destroying the building, the furniture and also the kitchen equipment, which was stored there. Fortunately, no-one was hurt. The fire brigade arrived swiftly and the fire was extinguished. It did not spread to any of the other buildings used during the summer camps.
Sunflower are assessing the damage and the cost of creating a new eating area so that they can run summer camps there again. Meanwhile, volunteers have started to clear the site already, although the weather will soon force a break in the work. Serious work will start in spring 2024, when we hope to be able to help Sunflower recover.
This year, the summer camp started on 6th June and the Parish is planning to continue summer activities until 31st August before children return to schools in September.
Currently up to 18 children benefit from the summer camp, 15 of them are disabled children with a range of disabilities: learning disabilities, autism, cerebral palsy, eyesight problems, heart and lung conditions and 4 children are from poor families. All came from the Kondopoga region, the youngest is 6 years of age and the eldest is 15.
At the beginning of the camp, there was a slight problem with finding volunteers, which has now been resolved – 2 people help in the kitchen and 3 help run summer activities. One of these volunteers came from ‘ Zabota’ (Care) social centre.
Every day is organised differently, with different activities such as sewing, drawing, clay modelling, educational games and outdoor games. The camp is also somewhere their parents can get advice, consultation with specialists and volunteers at the Parish and most importantly moral support and a boost to their family budget. Depending on the weather, lessons are held outdoors and this helps to boost the children’s physical stamina. Masterclasses are held for children to create their own masterpieces in needlework, drawing and applique. Everyone is particularly excited to spend time with Danae, the dog of one of the volunteers who made friends with all the children last year. The children enjoy joining in theatre performances too.
The Parish is also planning to provide children with school supplies for the new school term.
Vadim, taking part in the summer camp for the first time
This year, the summer camp for young orphanage-leavers took the form of a 3-day hike. A group of six took part, some had taken part before and some, like Vadim, were first-timers.
The whole experience was a challenging one for our young people. Right from the planning stage, they needed to learn new skills and to take responsibility.
They worked out the menus and the budget for a significant part of the trip. During the hike, the most challenging part was navigating the route and identifying suitable places to camp. Some of these experiences caused stress and anxiety, but the staff were there to help the young people cope with their difficulties. Over this short time, the young people grew more confident and resilient. This will be particularly useful for the three who are preparing to leave the programme, having worked with Sunflower for a few years. At the end of the hike, one of the young people said, “Now I can understand what my aims are for the summer more clearly, and I’m confident that I can reach them.
Alongside the walking and camping, the young people also had exercises to help them reflect. One interesting game was to find objects in their surroundings that expressed their personality. Their answers give us quite an insight. One likened themself to a little ant carrying a heavy load, another to a hare, which is scared all the time, but carries on. Kostya said, “I am like a path. Everyone walks on me, but I am solid and unchanging.”
Summing up at the end, one of the group said, “I was beginning to realise, but now I understand properly that I have to look after myself. Before I looked after the cat and my friends better than myself.” Sunflower will help the group transfer this learning into their ordinary every day lives back in St Petersburg. It should give them a great step forward as they become more independent and resilient.
