A big thank you from one of our deaf club families

Valentina Balobanova, who runs the Deaf Club we sponsor in St Petersburg, was doing her shopping recently when a woman stopped her. This was Nina, who used to go to the Deaf Club with her son Nikita. He is now twenty, but his mama still remembers Valentina and the Deaf Club. The meeting prompted her to write a thank you letter to Valentina, the other staff at the Early Intervention Institute, and to you, the donors who keep the Club running.

Nikita as a toddler
Nikita as a toddler
Read more: A big thank you from one of our deaf club families

“I would like to thank the Early Intervention Institute and Valentina Balobanova for the great help they gave me and my son son. A few words about us. My name is Nina Nikitina and my son Nikita was born in 2004. A year later, I found out that he could not hear and he was diagnosed with hedrocephalic syndrome (which was cured). Well, it would be an understatment to say that it was a tragedy for me. My world simply collapsed. I was raising him alone, and I had absolutely no idea what documents needed to be completed, or what to do with all this. Somehow, by chance, while sitting in the hallway of the audiology center, one of the mothers told me about the Early Intervention Institute. She told mme that they have an excellent diagnostic service there, and run classes. After some time, I realized this meeting was an incredible grace of God. Having come to the center, our family found care and friends with the same difficulties. I found out where to go, what documents to fill out, what benefits I was entitled to, and where to get his hearing aid serviced. Basically, I learned everything I needed here. I have never met such warm people before. We didn’t miss a single class or event that took place at the institute. This became our second home. I want to thank the sponsors who make this possible from the bottom of my heart. You do an incredible miracle for us, such families, children.”

Read more: A big thank you from one of our deaf club families Continue reading A big thank you from one of our deaf club families

Winter newsletter out now

Our winter newsletter is out now. You can read how your generous response to our summer appeal allowed us to rebuild the dining room of the Sunflower summer camp after it was destroyed by fire.

Many of the stories in this issue are about the difference your donations are making to disabled young people. We have Ilya, who is suprising his mother by making great progress even at the age of 27. We have news from Rain Kids in Chişinău, Moldova, who are benefitting from training for a key member of staff.

Our Christmas appeal this year is to help Adelina and other children who like her have special needs in Calarasi, Moldova. Can you help us raise £5,000 to fund a speech therapist and a special needs teacher for one year?

Finally, if you download the PDF version of the newsletter, you will find extra stories and details of our Christmas cards and gifts, which didn’t fit in the blog.

Sunflower: licensed to train

Sunflower group standing with forest in the background

Quality recognised

Our partners Sunflower have come a long way since we helped them get started 17 years ago. For some years we have been helping fund them to run training courses for social workers and psychologists. Now the quality of these courses has been recognised. They have received a licence as a training organisation and are able to issue certificates for the courses they offer on effectively supporting orphanage-leavers and foster or adoptive families. Their teaching is helping to raise the level of care across St Petersburg, the Leningrad region and beyond.

Summer camps revived

Thank you to everyone who contributed to our appeal to restore the Sunflower summer camp. Their dining area is now usable again after being destroyed by fire in 2023. The summer camps are held in a very special place and Sunflower use their surroundings well. A walk through the forest to the local sand quarry is a highlight of both summer camps, for young families and for the teenagers.

Our colleagues say this about the children’s experience this year:

Continue reading Sunflower: licensed to train

Communication Space helps Ilya

Ilya

Iya is 27 years old. Since birth, he has suffered from profound intellectual, visual, and motor impairments. He was also diagnosed with autism. Ilya is one of 20 children and young people who benefit from personalised help at the Communication Space Centre, which assists with their communication and independent living.

Due to his severe impairments, Ilya is unable to use communication books and pictures, relying only on natural gestures and pointing to objects. He fears and avoids unfamiliar public places, which can often lead to epileptic seizures. Ilya lives with his mother, Irina, and needs constant care and support from adults.

Last year the Centre’s specialists helped Ilya to adapt better to new places. He has become particularly good at understanding the difference between a hardware store and a grocery store, and he behaves differently in them. Grocery stores are his favourite! The main positive changes in his communication are related to food—it is during meals that Ilya began to initiate contact more often. At home, he has learned to rely on the daily routine.

Continue reading Communication Space helps Ilya

Alternative Communication improves every aspect of life

Andrei is 21 and he has Fragile X Syndrome, which affects his learning ability. He has been coming to Communication Space for group and individual sessions for more than ten years.

Alternative Communication is helping him in so many areas of his life. He uses the centre’s visual timetable and timers to understand what is going on through the day, which helps him stay calm.

He continues to make progress with his communication book. He can put together simple phrases and knows around 300 symbols. He can ask for help or ask for a break if an activity is getting too much. He has even started keep fit exercises using visual prompts. Now Andrei is working on the skills he will need to start using a tablet to communicate.

Communication Space write on their website:

People think that it’s all good here. And it really is good. But it didn’t happen by accident. It is the result of our accumulated experience and constant effort, which we put into creating a welcoming space, building a good team, putting together our programme, establishing our relationship with families. It’s good here because we don’t rely on formal interactions where the teaching task or organisational task is the most important, but on humanity.

What is for sure is that without the ability to communicate, it would all fall apart. Finding ways to communicate with those who can’t use speech is the key.

May newsletter out now

Our May newsletter is out now, including a round up of our news from Moldova, Georgia and Russia. You will see how your donations are being used to support Luisa, who found herself homeless in Tbilisi, and Vika in St Petersburg, whose mother died. We report on our colleagues who are teaching others how to adapt books for people with a range of disabilities, and providing the only therapy available for children with special needs in Călărași, Moldova.

An urgent problem we have this year is helping Sunflower recover from a fire at their summer camp base. This was caused last year by a fault at a local substation. Sunflower have managed to get the lights back on, and have also fundraised locally to replace damaged kitchen equipment. What they now need help with is transport both for their new equipment and for their volunteers, and food to sustain the volunteers as they make the site ready for this year’s camp.

Check out our appeal page if you would like to help.

Vika’s story

In some ways, Vika is not typical of the young people that Sunflower help. She is actually an orphan – her mother died when she was 16 – and she is living in an institution until the paperwork is completed on the flat she is entitled to.

The majority of the young people in these institutions are there because their parents were not capable of looking after them. Sunflower has also recently started accepting young people who have grown up in foster care or an adoptive family onto its programme. What they all have in common is an experience of trauma. They are all alone in the world, without family to guide or support them.

Vika explains something of what life has been like:

“I have lived all my life in St Petersburg. Me and Ilya are twins. I ended up in a children’s home after the authorities turned up at home. We had a lot to deal with in our life, we were hiding from the pandemic, there wasn’t any money then, we often moved around, we lived in Krasnogorodsk near Pskov, where Mama got ill and died. Then Dad (she calls her step-father dad) started drinking. It was scary. It was a good thing that we ended up in a children’s home, there we get all our benefits, and they’ve even shown us a flat in our own district. That’s some kind of luck.”

Vika is carrying a lot of responsibility. She worries very much about her brother, who she says is depressed. She can’t imagine life without him. She finds it difficult and frightening to think about the future.

Vika is really benefiting from Sunflower’s individual counselling. It doesn’t just allow her to get things off her chest, but to put the events of her life in order and to think about them clearly and calmly. She also goes to the group meetings once a month.

Making books accessible

If you have young children in your life, you have probably come across the “That’s not my” series of tactile books. The chances are you won’t have seen them in this format.

This spring, our colleagues at Communication Space have been leading workshops on how to adapt books for those with multiple disabilities. The changes may be as simple as making pages easier to turn, or they might involve translating text into the PECS language of symbols used by some non-verbal people. As ever, the adaptations are simple, achievable and tailored to the specific needs of each person.

28 professionals and parents took part in the course and between them they made more than 50 adapted books.

Communication Space make communicating worthwhile

When talking comes easily to you, it’s hard to imagine finding it so boring, you just can’t be bothered. However, until Pavel started sessions at Communication Space, boredom was seriously holding him back.

Up until last year, Pavel had taken part in various programmes to help him communicate. These even included using alternative communication, since he doesn’t talk. However, the same pattern would emerge each time. He would learn some simple symbols, they would enter his vocabulary, but then he would get bored and stop using them. He was getting quite disengaged with the whole thing until Communication Space tried a new approach.

Continue reading Communication Space make communicating worthwhile

Exciting trip for Kondopoga’s children

Recently, the Kondopoga parish fulfilled an ambition to take the older children to visit Staraya Ladoga, the first capital of Russia. Despite hitting a snow storm as they travelled south from Kondopoga, they managed to get there and back in a day, and to see the highlights of this ancient town.
Continue reading Exciting trip for Kondopoga’s children