Children with Autism and Rare Diseases in Moldova

St Gregory's Foundation supporters visiting Copiii Ploii in Moldova, a charity supporting children with autism and rare diseases.
St Gregory’s Foundation supporters visiting Copiii Ploii (Rain Kids) in Moldova. Doina Losetschi (centre, in a white T-shirt), the charity’s director and mother of a daughter with Rett syndrome, founded the organisation to support families like her own. Today, it helps more than 100 families.

Location: Moldova
Founded: 2014 by a group of parents of children with special needs
Who they support: Children with autism, rare diseases and other developmental challenges
Families supported: More than 100 families each year
Services provided: Therapy, educational support and family assistance
Team: Psychologists, speech therapists, physiotherapists, special education specialists and volunteers
Future goal: Creating a dedicated centre for teenagers with special needs

Three years ago, St Gregory’s Foundation discovered a small grassroots charity in Moldova called Copiii Ploii (Rain Kids). Founded by a group of determined parents, they had created something extraordinary for children with autism and rare diseases despite having very limited resources.

We knew straight away that we wanted to support them.

This June, we were delighted to introduce Rain Kids to a group of 11 supporters from the UK, who travelled with us to Moldova. They spent time with the children and their families, met the wonderful team of therapists and volunteers, and saw for themselves the extraordinary difference this small organisation makes every single day.

Around 100 vulnerable families rely on Rain Kids each year. For children with autism, rare diseases and other developmental disabilities, it is far more than a therapy centre. It is a place where they are understood, encouraged and given the opportunity to learn, communicate and thrive. Parents receive practical support, expert guidance and, perhaps most importantly, the reassurance that they are not facing their challenges alone.

Watching the children proudly demonstrate new skills, seeing parents smile with renewed confidence, and meeting the passionate team behind the project left a lasting impression on everyone in our group.

But there is another story beginning to unfold.

Many of the children who first came to Rain Kids are now growing into teenagers. Sadly, in Moldova, support for young people with special needs almost disappears once they reach adolescence, leaving families with very few places to turn.

The team refuses to accept that this should be the end of the journey.The local municipality has gifted Rain Kids an empty building, and they have an inspiring vision for its future. One day, they hope it will become the area’s first centre dedicated to teenagers with special needs—a place where young people can continue learning, gain confidence, develop practical life skills and prepare for adulthood with dignity and purpose.

For now, however, their focus remains firmly on the children who arrive at the centre every day, needing therapy, encouragement and hope.

This is exactly the kind of grassroots project that St Gregory’s Foundation exists to support—small organisations driven by compassion, where every donation has a direct and lasting impact on the lives of children and their families.

Can you help?

Your donation will help Rain Kids continue providing life-changing therapy and support to children with autism and rare diseases through its existing centre. Every gift, whatever its size, helps ensure that vulnerable children and young people receive the support they deserve. Please donate today and help us give hope to children and families in Moldova.

Curious twins need support to learn

Darius and David are curious little boys, but they struggled to join in with activities at their kindergarten.  When they were little, their mother had already noticed that they didn’t respond to their names and didn’t play together. But it was when they hit three and started group activities at kindergarten that their difficulties became more obvious.  They were unable to sit still, concentrate or socialise with the other children.  Often distressed, their behaviour was difficult to manage within the class.  However, fortunately, the director of the kindergarten recommended that their mother turn to our colleagues at The Wish for help.

Support from The Wish is important for the whole family.  They live in a village 6 miles from Calarasi.  Their father is abroad to earn enough to look after the family, so their mother has her hands full.

Fortunately, with the right support David and Darius have already made great progress.  They go to The Wish once a week and take part in individual and group sessions.  The aims at the moment are to help them improve their communication and social skills, their concentration and their coordination.  Over time, their behaviour has become less impulsive, and they are building better relationships with children and adults.  Now that they are six they are much more able to join in group activities, and their natural curiosity is helping them learn.  The difference is now they understand some simple rules, they are able to follow up on their curiosity within the guidelines of the group.

In Moldova children start school at six.  The coming years will no doubt present new challenges for Darius and David.  We are grateful to all our supporters who help us fund the therapy that they need to be able to thrive and learn.

Our Moldovan Partners, Rain Kids, assess our impact

If you missed our September AGM, you can still read the presentation from Ana Gorea, co-founder of Rain Kids, a small charity that works with children with special needs. She lays out how St Gregory’s grants to provide training for their staff are helping to raise standards of care.

Charity Ball in Chişinău

Our very active partners at Sunny Corner in Moldova are putting together another wonderful event to promote inclusion for people with learning disabilities.

On June 8th, they’re hosting a charity ball at the Chișinău Arena. The venue is fully adapted for people with disabilities, and Sunny Corner has invited more than 120 participants, including people with special needs and their peers aged 8 to 45, as well as parents, carers, teachers, and more from across Moldova, Ukraine, and Romania.

Participants’ performances will be accompanied by the State Symphony Orchestra of the Republic of Moldova. Local and national authorities will be attending too. Additionally, for the first time, an auction will be held to raise funds for their “Dream Manor,” which provides training programmes to enhance the quality of life for individuals with special needs.

St. Gregory’s is proud to be contributing to this memorable event.

Winter newsletter out now

Our winter newsletter is out now. You can read how your generous response to our summer appeal allowed us to rebuild the dining room of the Sunflower summer camp after it was destroyed by fire.

Many of the stories in this issue are about the difference your donations are making to disabled young people. We have Ilya, who is suprising his mother by making great progress even at the age of 27. We have news from Rain Kids in Chişinău, Moldova, who are benefitting from training for a key member of staff.

Our Christmas appeal this year is to help Adelina and other children who like her have special needs in Calarasi, Moldova. Can you help us raise £5,000 to fund a speech therapist and a special needs teacher for one year?

Finally, if you download the PDF version of the newsletter, you will find extra stories and details of our Christmas cards and gifts, which didn’t fit in the blog.

Our Christmas appeal – a chance to help Ana

This year our Christmas appeal is in aid of The Wish, a Moldovan charity that is providing rare community support for children with disabilities in Moldova.

Ana’s story

Ana is eleven now, and she has been coming to The Wish since she was five.  Ana had a difficult start in life.  She used to live in the countryside with her mother, who is disabled, and her grandfather.  After her grandfather died her mother couldn’t cope financially or practically.  Fortunately, the wider family were able to help and Ana now lives in Călărași with her aunt.

Ana also has Down syndrome.  Her aunt is working hard to try and meet her additional needs and brought her to The Wish.  When she first joined aged five her language skills were poor, as well as her co-ordination and fine motor skills.  The Wish provide her with a personalised programme of therapy including speech therapy.  She also takes part in a whole range of activities, both educational activities and social ones.  Ana is integrated into a local mainstream school, but she only attends two days a week.  This makes The Wish’s support absolutely vital both for her and her family.

Ana is lucky in that in her aunt’s family she feels loved and important as a member of the family.  Eugenia strives to educate her properly and to be her mother and close friend as well.  The Wish supports her aunt and mother by teaching them about Down Syndrome and about some of the strategies and techniques they use to work effectively with Ana.  They are fortunate to have formed a good team with her family – together they can give Ana much more support than either of them can alone.

How to donate today

We are delighted to see the progress that Ana has made, and to see her enjoying our group activities so much.  It is very much for Ana, and other children like her, that we are appealing today.  It is so important that Ana’s care is not interrupted, and so we are doing all we can to fill gaps in the local funding.  Can you help us raise £4,300 by the end of the year so that we can continue to be there for Ana and her family (as well as 29 other children and young people)?

Counselling for special needs parents

staff member from Communication Space with a parent

Back in the first lock-down of the pandemic, we helped Communication Space set up an online counselling service for parents whose children have special needs.

The pandemic crisis may have passed, but parents can still easily find themselves overwhelmed, particularly in a society that has little positive to say about disabled people. So we have continued to fund the service, and are delighted that a second, local funder has also been found. This means that more families can be reached – 109 families in the last year. Each family can access a course of individual counselling as well as support groups led by psychologists.

Read more: Counselling for special needs parents

The feedback we have is very positive. Yulia wrote,

” I need these groups because they help me feel more stable. This influences how I feel about my child’s special needs, my relationship with the professionals we work with, and relationships within our family. In the end it influences the quality of my choices for child’s education and socialisation.”

Natalia can point to a very concrete improvement in her quality of life. Thanks to the course, she has been able to improve her relationship with her mother.

We are also delighted that Communication Space have been able to set up a training flat. Sergei stays the night once a week with other young adults. This is the first time he has slept anywhere other than at home. At first he found this distressing, but now he is much more settled. While Sergei learns valuable life skills, like cooking, his mother Lydia gets some essential respite. For the first time, she has time she can call her own, to get things done, to spend time with her other children, or just to rest.

Roma’s first home post-orphanage

Orphanage-leaver Roma smiling as he goes into his new flatSunflower, our partners in St Petersburg, help orphanage-leavers adjust to independent living.  Much of their work is done through support groups, but an individual home visit can work wonders when there is a particular crisis.  By donating to St Gregory’s you make this service happen.

One young man who desperately needed a home visit is Roma. He grew up in an institution for deaf children and he’s now studying at college. When he lived in an institution he was quite confident. It was only when he left that he began to be afraid.

Roma was given a flat, but it was a long way from the part of the city that he knew, and even after he was given the right to live there he continued living in a hostel.

“I don’t know anything about my flat. After I signed the documents I didn’t even go there. I don’t know how to get there and I can’t remember if it still needs work doing on it. I went to the flat once with a teacher from our children’s home by car, had a look and I can’t remember anything about it. I just have a bit of paper with an address and the keys.”

Like all the others, Roma is very scared of somehow being conned out of his flat by some “dangerous” people, so it is difficult for him to see his new home as secure and stable.

With Sunflower’s social teacher, Roma worked out a convenient route from home using his travel pass. They visited his new flat. They got to know the surrounding area and found out where the doctors’ surgery, the post office and other local services are. They worked out what furniture he would need, made a budget and together made a few purchases, teaching Roma how to do this independently in future. Lastly, the social teacher connected Roma with some local organisations that can help people with his disability, and helped him explore how he could spend his leisure time.

Seeing the smile on Roma’s face visiting his new flat makes it all worth while. Hopefully, he will also be able to join in the group activities and continue to grow in confidence and problem-solving ability.

It costs just £7 to make a home visit to someone like Roma, but you can see what a huge difference it can make to someone’s life.

Kindergartens equipped to look after disabled children

Kindergarten pupilFor most children in Russia, kindergarten is the first step in a their education and the first experience of a life outside the family.  This is a stage that many disabled children miss out on because mainstream kindergartens aren’t equipped to look after them.  There just aren’t enough places in mainstream or special provision.

This term we hope that more children with special needs will have a more positive start in kindergartens, and that the staff will feel more confident meeting their needs.  Our partner organisation, Physical Rehabilitation, in St Petersburg has been running a programme particularly aimed at training kindergarten staff Continue reading Kindergartens equipped to look after disabled children