News

A window on Communication Space’s work with non-verbal, autistic adults

When you come across someone who is non-verbal, their life may seem to be shrouded in mystery, their thoughts and feelings inaccessible. Unless you know someone well who is non-verbal, the chances are that you feel rather daunted by interacting with them. Without help to bridge this gap, people who are unable to speak can become incredibly isolated. Fortunately, techniques do exist for enabling people we once thought could not communicate, to express their wishes, make choices and connect with others. Our colleagues at Communication Space are introducing these techniques to the Russian-speaking world. This beautiful video that they have made gives a fantastic insight into their work.

A note for non-Russian-speakers. Open the video in You Tube, open the settings, select subtitles. Turn subtitles on by selecting Russian. You can then go back into subtitles and select auto translate to get auto-generated English subtitles.

Călărași project in Moldova helps Samuel

Thanks to generous donations from our supporters, we have been able to employ a speech therapist to provide vital support to children with special needs in the Călărași region of Moldova.  Samuel is one of the children who we have been able to help.  Seeing him thriving and making progress, we are very grateful to everyone who helps us keep these services going.

Read more: Călărași project in Moldova helps Samuel

Our colleagues from the Wish centre tell us:

Samuel, a 9-year-old boy with Down syndrome, from Calarasi, is absolutely full of energy and curiosity. He is a cheerful, affectionate and curious child. He loves horses and could spend hours looking at pictures of them or listening to stories about horse adventures. We can see that he has leadership skills: he communicates with the other students with gestures or sounds, and he wants to be understood and appreciated. During games, he likes to be listened to, and when he feels that someone is paying attention to him, he gets even more excited. 

Due to his disability, Samuel experiences challenges in communication and social interaction. To develop his skills, he needs speech therapy, educational activities and behavioral support, which fortunately we have been able to provide for him since 2020.  In 2022, he started school in the 1st grade, which represented an important step in his development. At the center and at school, he learns to communicate more effectively, express his emotions, needs, preferences and interact with other children. 

Samuel’s progress is visible: he has learned to use more words and gestures to express his wishes, he is more attentive and involved in activities. His family is proud of him and supports him every step of the way.  The teacher and specialists from the “Wish” center are impressed by his effort and desire to learn. His fellow students have learned that Samuel is a special child and very kind.  They all get on very well with him.  

New apprenticeships for Mkurnali

Can you help us give young people the way into a new profession and eventually to a new life? Any donation, large or small, will help it happen. Mkurnali needs £3,500 to repair the old garage and £600 to teach Pavel to become a professional trainer for 10 apprentices.

Over the years, Mkurnali has provided support to more than 400 young people, guiding them through the arrest and court process. Those who undergo rehabilitation at Mkurnali and benefit from the warmth and dedication of its staff go on to establish a home and a family, find jobs, and integrate into society at large. Remarkably, reoffending hardly occurs among these young people.

However, Mkurnali faces additional challenges, which we discussed with Father George, the founder of Mkurnali, during our trip to Tbilisi with a group of our UK supporters last May. One of these challenges is that ex-offenders and the former homeless find it enormously difficult to get employed.

In Georgia, nepotism is a well-known fact almost nobody denies. Employment is often found not through prevailing in fair, orderly selection processes, but through personal connections. It is evident in almost every Georgian firm and institution. In recent years public awareness and open discussion has happened at a high level (for example in the public sector or political debate) but the public and media are much less attentive. Father George told us that even cleaning jobs cannot be found without personal connections!

This makes Mkurnali’s social enterprises vital for their residents, providing them with new skills and the prospect of eventually opening their own businesses. Among these initiatives is a bicycle and motorbike repair workshop, which can provide training in trades and entrepreneurship for 10 young people.

Apparently, interest in cycling is rising in Georgia, especially in mountain biking, which is widely enjoyed by tourists in Georgia’s hilly and mountainous landscapes. As for the motorbikes, those who have experienced the traffic in Georgia know that motorbikes are very popular in the streets of Tbilisi and they are also widely used for deliveries.

Since our meeting with Father George, we’ve taken the first steps to help Mkurnali.

Thanks to the legacy of the late George Guest, St Gregory’s Foundation has assisted in purchasing a garage which can be transformed to use as the workshop. The garage covers a total area of 38.97 square metres and internally, remains unrenovated; it lacks plastering and a concrete floor.

Repair works and equipping the garage are planned for the coming summer and we are raising funds to help Mkurnali turn the old garage into a working income-generating enterprise. Also part of the plan is to provide training for Pavel, one of Mkurnali’s residents, who previously worked in Mkurnali’s car repair workshop. This training can be organised at one of the repair workshops in Tbilisi under the supervision of an experienced foreman. This training is scheduled for summer 2025. The income generated from the workshop will also be used for further investments in repairs and to increase the number of apprentices.

We also look to acquire used bicycles from the UK and Europe to be donated to Mkurnali – do you know anyone who may be able to help us?

How Timofei is thriving thanks to our Deaf Club

In St Petersburg, we support a Club for pre-school children with impaired hearing and their parents. Timofei is nearly three and has been a member of the Club with his mama for a few months. He is one of several club members who have additional needs as well as being deaf. Fortunately, because the Club is part of the Early Intervention Institute in St Petersburg, his family has been able to access support from an Occupational Therapist, which has very quickly made a huge difference.

Continue reading How Timofei is thriving thanks to our Deaf Club

Training benefits children straight away

We are delighted that, with your help, the lead therapist at our Moldovan partner, Rain Kids, has been able to start her studies to develop her skills in working with autistic children.  A particular focus of Ana’s traininng has been early intervention with young children aged between 12 and 48 months.  We all know how vital these early years are for child development.  Providing early support can make a great difference to an autistic child’s communication skills, their behaviour and relationships in the family.  Rain Kids are finding that more families are coming to them with their concerns at this early stage, so it is very positive that our colleagues now feel better equipped to help them.

Continue reading Training benefits children straight away

A big thank you from one of our deaf club families

Valentina Balobanova, who runs the Deaf Club we sponsor in St Petersburg, was doing her shopping recently when a woman stopped her. This was Nina, who used to go to the Deaf Club with her son Nikita. He is now twenty, but his mama still remembers Valentina and the Deaf Club. The meeting prompted her to write a thank you letter to Valentina, the other staff at the Early Intervention Institute, and to you, the donors who keep the Club running.

Nikita as a toddler
Nikita as a toddler
Read more: A big thank you from one of our deaf club families

“I would like to thank the Early Intervention Institute and Valentina Balobanova for the great help they gave me and my son son. A few words about us. My name is Nina Nikitina and my son Nikita was born in 2004. A year later, I found out that he could not hear and he was diagnosed with hedrocephalic syndrome (which was cured). Well, it would be an understatment to say that it was a tragedy for me. My world simply collapsed. I was raising him alone, and I had absolutely no idea what documents needed to be completed, or what to do with all this. Somehow, by chance, while sitting in the hallway of the audiology center, one of the mothers told me about the Early Intervention Institute. She told mme that they have an excellent diagnostic service there, and run classes. After some time, I realized this meeting was an incredible grace of God. Having come to the center, our family found care and friends with the same difficulties. I found out where to go, what documents to fill out, what benefits I was entitled to, and where to get his hearing aid serviced. Basically, I learned everything I needed here. I have never met such warm people before. We didn’t miss a single class or event that took place at the institute. This became our second home. I want to thank the sponsors who make this possible from the bottom of my heart. You do an incredible miracle for us, such families, children.”

Read more: A big thank you from one of our deaf club families Continue reading A big thank you from one of our deaf club families

Winter newsletter out now

Our winter newsletter is out now. You can read how your generous response to our summer appeal allowed us to rebuild the dining room of the Sunflower summer camp after it was destroyed by fire.

Many of the stories in this issue are about the difference your donations are making to disabled young people. We have Ilya, who is suprising his mother by making great progress even at the age of 27. We have news from Rain Kids in Chişinău, Moldova, who are benefitting from training for a key member of staff.

Our Christmas appeal this year is to help Adelina and other children who like her have special needs in Calarasi, Moldova. Can you help us raise £5,000 to fund a speech therapist and a special needs teacher for one year?

Finally, if you download the PDF version of the newsletter, you will find extra stories and details of our Christmas cards and gifts, which didn’t fit in the blog.

Adelina’s story

Adelina on the left with her friend Ana

Adelina (on the left in the picture) is 9 years old and has Down Syndrome. She struggles with language and communication, but these difficulties don’t stop her from being eager to express herself and trying to make herself understood. She loves music and will arrange the other children in a circle while she pretends to play the guitar or claps along with her favourite songs. The children watch her and even applaud at the end of the song.

This year our Christmas appeal aims to raise £5,000 to pay for a speech therapist and a special needs teacher to support children like Adelina. Read on and you will find out how the team at The Wish Centre are helping Adelina flourish.

Continue reading Adelina’s story

Sunflower: licensed to train

Sunflower group standing with forest in the background

Quality recognised

Our partners Sunflower have come a long way since we helped them get started 17 years ago. For some years we have been helping fund them to run training courses for social workers and psychologists. Now the quality of these courses has been recognised. They have received a licence as a training organisation and are able to issue certificates for the courses they offer on effectively supporting orphanage-leavers and foster or adoptive families. Their teaching is helping to raise the level of care across St Petersburg, the Leningrad region and beyond.

Summer camps revived

Thank you to everyone who contributed to our appeal to restore the Sunflower summer camp. Their dining area is now usable again after being destroyed by fire in 2023. The summer camps are held in a very special place and Sunflower use their surroundings well. A walk through the forest to the local sand quarry is a highlight of both summer camps, for young families and for the teenagers.

Our colleagues say this about the children’s experience this year:

Continue reading Sunflower: licensed to train

Communication Space helps Ilya

Ilya

Iya is 27 years old. Since birth, he has suffered from profound intellectual, visual, and motor impairments. He was also diagnosed with autism. Ilya is one of 20 children and young people who benefit from personalised help at the Communication Space Centre, which assists with their communication and independent living.

Due to his severe impairments, Ilya is unable to use communication books and pictures, relying only on natural gestures and pointing to objects. He fears and avoids unfamiliar public places, which can often lead to epileptic seizures. Ilya lives with his mother, Irina, and needs constant care and support from adults.

Last year the Centre’s specialists helped Ilya to adapt better to new places. He has become particularly good at understanding the difference between a hardware store and a grocery store, and he behaves differently in them. Grocery stores are his favourite! The main positive changes in his communication are related to food—it is during meals that Ilya began to initiate contact more often. At home, he has learned to rely on the daily routine.

Continue reading Communication Space helps Ilya