Autism Acceptance Month

April is World Autism Acceptance Month. In the UK we have made a shift from the usual awareness month to an acceptance month, and that is important. Of course autistic people around the world want other people to be aware of autism, but they also want to be accepted as part of the community, and as who they are.

However, in many parts of the world a great deal of work still needs to be done on awareness and the most basic rights for autistic people. In Eastern Europe, autism is still a new diagnosis and support within the community can be very patchy. In Moldova autistic children are often not able to attend school. There is little or no understanding of their needs, so if they do attend they find school very tough. We work with two organisations that are filling the gap, providing therapy and education for children who would otherwise be unsupported. They can also advocate for children with local schools so that they can attend, albeit sometimes part-time or with their mother acting as an unpaid classroom assistant.

In Russia we work with Communication Space to raise awareness of alternative communication methods that can work with non-verbal autistic children and young people. Those who attend their own centre are a wonderful advert for this approach. They are learning to express their wishes, to follow instructions, and to communicate out in the world, in shops and cafes. Online training sessions spread the approach to parents and professionals across the Russian-speaking world. Alongside this practical work, Communication Space also runs counselling sessions for parents. For them, acceptance is the first step towards a more positive outlook on life.

We hope that these small steps towards greater awareness, understanding and support will in time lead to greater acceptance in the communities we work in and beyond.

A window on Communication Space’s work with non-verbal, autistic adults

When you come across someone who is non-verbal, their life may seem to be shrouded in mystery, their thoughts and feelings inaccessible. Unless you know someone well who is non-verbal, the chances are that you feel rather daunted by interacting with them. Without help to bridge this gap, people who are unable to speak can become incredibly isolated. Fortunately, techniques do exist for enabling people we once thought could not communicate, to express their wishes, make choices and connect with others. Our colleagues at Communication Space are introducing these techniques to the Russian-speaking world. This beautiful video that they have made gives a fantastic insight into their work.

A note for non-Russian-speakers. Open the video in You Tube, open the settings, select subtitles. Turn subtitles on by selecting Russian. You can then go back into subtitles and select auto translate to get auto-generated English subtitles.

Călărași project in Moldova helps Samuel

Thanks to generous donations from our supporters, we have been able to employ a speech therapist to provide vital support to children with special needs in the Călărași region of Moldova.  Samuel is one of the children who we have been able to help.  Seeing him thriving and making progress, we are very grateful to everyone who helps us keep these services going.

Read more: Călărași project in Moldova helps Samuel

Our colleagues from the Wish centre tell us:

Samuel, a 9-year-old boy with Down syndrome, from Calarasi, is absolutely full of energy and curiosity. He is a cheerful, affectionate and curious child. He loves horses and could spend hours looking at pictures of them or listening to stories about horse adventures. We can see that he has leadership skills: he communicates with the other students with gestures or sounds, and he wants to be understood and appreciated. During games, he likes to be listened to, and when he feels that someone is paying attention to him, he gets even more excited. 

Due to his disability, Samuel experiences challenges in communication and social interaction. To develop his skills, he needs speech therapy, educational activities and behavioral support, which fortunately we have been able to provide for him since 2020.  In 2022, he started school in the 1st grade, which represented an important step in his development. At the center and at school, he learns to communicate more effectively, express his emotions, needs, preferences and interact with other children. 

Samuel’s progress is visible: he has learned to use more words and gestures to express his wishes, he is more attentive and involved in activities. His family is proud of him and supports him every step of the way.  The teacher and specialists from the “Wish” center are impressed by his effort and desire to learn. His fellow students have learned that Samuel is a special child and very kind.  They all get on very well with him.